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There is a vital need for families affected by Duchenne Muscular Dystrophy to receive specialist psychological support from the point of diagnosis and into the years ahead. We aim to fund therapy for the whole family, to support their own individual needs and help them manage their mental health.
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Beneficiaries
Situation
We are all becoming increasingly aware of the importance of good mental health in our daily lives. For children living with a life-limiting condition, this is even more vital. Duchenne is a condition with profound affects on the body and also the minds and yet we have found that psychological support offered by hospitals that treat children with Duchenne is inconsistent, can take several months to access and in some cases is not available at all.
Solution
We are currently working with a network of clinical psychologists who a specialists in working with children and young people affected by physical disability. We want to be able to offer free access to psychologists to anyone who is living with Duchenne and also to siblings and parents who will be dealing with their own mental health challenges as a result of having a loved one diagnosed with the condition.
