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AMEND needs funding to maintain and expand its specialised counselling service to its members with rare endocrine diseases. Current access is over-subscribed just when it is needed most, particularly by newly diagnosed patients who often have extensive disease after late diagnosis.
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Beneficiaries
Situation
Being diagnosed with a rare endocrine disease takes 4 years on average, during which time patients often suffer significant symptoms, may see many different doctors and receive many incorrect diagnoses. By the time patients are diagnosed, their disease has often spread and the prognosis is poor. The constant battle for diagnosis is exhausting both physically and mentally. AMEND's free Counselling Service provides help but has become over-subscribed as our membership and demand grows each year.
Solution
AMEND's Counselling Service is provided by psychotherapists with experience in rare endocrine diseases. With sufficient additional funding, we will increase the number of sessions available to our members from 4 to 5 or 6 per week, so that we can respond to increasing demand.