Pans/Pandas UK

PANS PANDAS UK, Research & Clinical Trials Project

PANS and PANDAS are neuropsychiatric conditions which are triggered by a misdirected immune response, which results in brain inflammation. The young person will suffer incredibly debilitating symptoms, such as depression, involuntary movements and eating restrictions.

history Campaign has now closed

It ran from 12:00 PM, 30 November 2021 to 12:00 PM, 7 December 2021

Registered Charity in England and Wales (1178484)

open_in_new https://www.panspandasuk.org
Check mark Match funded

Campaign target

£11,000

Amount raised

£13,003

Donations

93

Championed by The Hospital Saturday Fund

    Categories

  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research
  • Mental HealthMental Health

    Helping

  • Children (3-18)Children (3-18)
  • People With DisabilitiesPeople With Disabilities
  • Young People (18-30)Young People (18-30)

Location

United Kingdom

Situation

PANS PANDAS UK was originally created 3 years ago in order to raise awareness and understanding of these conditions amongst the general public and medical professionals. ​ PANS PANDAS UK are working closely with a Network of Doctors in order to ensure better diagnosis and early effective treatment for those suffering with these little understood but life changing conditions. Now, we are raising the funds to do our own research following the developments from top universities in the US

Solution

By raising funds for research we can, firstly, prove that there are genetic reasons for these children to develop incredibly debilitating symptoms, and also, that their physical and mental health symptoms are due to brain inflammation and a breakdown of the Blood Brain Barrier after infection. This would be following on recent US research.

  • Within 3 days of Neurofen and antibiotics Christopher’s speech started returning to normal, his behaviour became more rational, the anxiety was better and his body tic wasn’t as frequent.

    — Matt and Lisa Blyth

  • The psychologist told me that Bella had disclosed that she was planning to kill herself. She also said that Bella was hearing voices. I’m angry that nobody thought to investigate her symptoms further when she first presented at her most poorly.

    — Bella's mum

  • The tic was put down to Tourette’s or to an allergy to something and the behaviour was said to be “normal” for his age. At this point we were desperate, and it was heart-breaking to see. Not only was Jack suffering mentally, he was also physically very poorly.

    — Neil Gilson