Muscular Dystrophy UK

Support and information at Muscular Dystrophy UK

We are here for everyone diagnosed with muscular dystrophy and are a vital source of support for our community. We quickly update our support services in line with changing Government advice to ensure our community is informed about how Covid announcements may affect their often challenging lives.

history Campaign has now closed

It ran from 12:00 PM, 30 November 2021 to 12:00 PM, 7 December 2021

Registered Charity in England and Wales (205395)

open_in_new https://www.musculardystrophyuk.org/
Check mark Match funded

Campaign target

£90,000

Amount raised

£86,436

Donations

85

Championed by The Julia and Hans Rausing Trust

    Categories

  • Health/WellbeingHealth/Wellbeing
  • Information/AdviceInformation/Advice

    Helping

  • Children (3-18)Children (3-18)
  • People With DisabilitiesPeople With Disabilities

Location

United Kingdom

Situation

Calls for support remain higher than pre-covid levels. Every day counts when you have a progressive muscle-wasting condition. We’re here for anyone affected, from diagnosis onwards. Covid advice continues to change on a weekly basis – there is a lot to unpick for all - this is exacerbated for those living with a disability. We act as a conduit between Public Health announcements and our community ensuring that information is quickly updated in a way that takes their condition into consideration.

Solution

Over the past 18 months those living with muscular dystrophy have been subjected to a heightened sense of isolation. We will continue to expand our information, advocacy and support services by offering a new range of online information and peer support events to bring our community back together as the country 'unlock. Our helpline is vital. We'll also offer 15 online seminars to provide the latest advice on specific conditions as well as a number of living well topics for independent living.

  • "I've made some wonderful friends by attending Muscular Dystrophy UK's support groups"

    — Laurie Wallis

  • Once again I want to thank you and your organisation for supporting me and my family at our darkest times. I say thank you for your continuous support.”

    — Anon