Tuberous Sclerosis Association

Supporting people with Tuberous Sclerosis Complex

The TSA The Tuberous Sclerosis Association (TSA), founded in 1977, is the only UK charity focused on improving the lives of people affected by the rare genetic disorder Tuberous Sclerosis Complex (TSC). The TSA aims to provide help for today and a cure for tomorrow.

history Campaign has now closed

It ran from 1:00 AM, 21 June 2021 to 12:00 AM, 31 December 2021

Registered Charity in England and Wales (1039549)

open_in_new http://www.tuberous-sclerosis.org/

Campaign target

£216,355

Amount raised

£3

Donations

1

    Categories

  • Health/WellbeingHealth/Wellbeing
  • Information/AdviceInformation/Advice
  • Medical ResearchMedical Research

    Helping

  • General Public/HumankindGeneral Public/Humankind
  • People With DisabilitiesPeople With Disabilities

Location

United Kingdom

Situation

Tuberous Sclerosis Complex (TSC) is a rare genetic disease causes tumours to form in many different organs, largely in the brain, eyes, heart, kidney, skin, and lungs. TSC can cause seizures, developmental delays, intellectual disability, ADHD, behaviour problems, autism, and anxiety and depression. For many having TSC is like walking through a minefield, as it is impossible to know when another symptom will present itself. For those needing help, the TSA offers a wide range of support.

Solution

The TSA aims to provide help for today and a cure for tomorrow by: • Providing direction or a listening ear through our support and information services for the TSC community, including through our UK-wide TSA Support Line • Organising events and opportunities across the UK and virtually for those affected by TSC, allowing the TSC community to come together and feel less alone • Funding internationally significant research into the causes, diagnosis, management and treatment of TSC.

  • “Thanks to the TSA, I feel strongly connected to other parents of children who live with TSC, giving my family the opportunity to link up with likeminded people who are travelling the same road as us. I am hugely thankful and grateful for the work of the TSA

    — Philippa - TSC Mum