ME Association

Energising M.E. Research

We need to fund more biomedical research into M.E. We have a proud record of supporting M.E.researchers but our ability to continue to do so fell away dramatically during the pandemic when our research income was reduced to a trickle.

history Campaign has now closed

It ran from 12:00 PM, 30 November 2021 to 12:00 PM, 7 December 2021

Registered Charity in England and Wales (801279)

open_in_new http://www.meassociation.org.uk
Check mark Match funded

Campaign target

£40,000

Amount raised

£41,593

Donations

201

Championed by The Reed Foundation

    Categories

  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research

    Helping

  • Older PeopleOlder People
  • General Public/HumankindGeneral Public/Humankind
  • Young People (18-30)Young People (18-30)

Location

United Kingdom

Situation

Millions of pounds of funding are being put into Long Covid research but no new money is being put into research on ME/CFS – although in many respects the post-viral fatigue common to both looks much alike. People with ME/CFS feel their illness has been neglected for years and their views on research priorities have been ignored. Today's bias in favour of Long Covid research makes people with M.E feel like the poor relations living on the wrong side of the Berlin Wall.

Solution

We need to attract high-quality research applications and have ME/CFS included in Long Covid research studies, which are already exploring therapeutic overlaps with ME/CFS. Money invested in studies we support could be given on the understanding that researchers use their results to apply for larger grants from the Medical Research Council and the National Institute for Health Research.

  • It's authoritative. Dr Shepherd should take a lot of the credit on the medical side - he's top notch!

    — What makes the ME Association unique?

  • I like most of us that you are consistent in your beliefs about this illness and vigilant on our behalf about negative media coverage.

    — What's special about the ME Association?

  • You are bold and robust – yet professional – in your criticism of psychosocial theories of illness perpetuation

    — What do you like about the ME Association?