Tuberous Sclerosis Association

Support Fund for people with TSC

Help the TSA provide a lifeline to individuals and families affected by rare genetic condition Tuberous Sclerosis Complex when the financial implications of this complex potentially life limiting condition becomes too much to carry. Small grants making a HUGE difference!

history Campaign has now closed

It ran from 12:00 PM, 30 November 2021 to 12:00 PM, 7 December 2021

Registered Charity in England and Wales (1039549)

open_in_new http://www.tuberous-sclerosis.org/
Check mark Match funded

Campaign target

£6,000

Amount raised

£7,650

Donations

45

Championed by The Reed Foundation

    Categories

  • Community Support & DevelopmentCommunity Support & Development
  • Health/WellbeingHealth/Wellbeing

    Helping

  • General Public/HumankindGeneral Public/Humankind
  • People With DisabilitiesPeople With Disabilities

Location

United Kingdom

Situation

Imagine you’re a parent of a child with Tuberous Sclerosis Complex, a rare genetic disease, causing your child to be doubly-incontinent and your washing machine breaks down and you don’t have the savings to replace it quickly. This rapidly becomes a desperate situation. We often hear stories like this one from individuals and families affected by TSC when the financial implications of the condition become too much to carry.

Solution

Our Support Fund addresses this by providing small discretionary grants confidentially to our community offering a lifeline to individuals and families on low incomes affected by TSC when the financial implications of the condition overwhelm them. With no deadlines, grants can be made as a need arises, often when applicants have nowhere else to turn. Grants reduce anxiety, provide fast, practical help and improve the physical and emotional wellbeing of both individuals with TSC and their carers.

  • My daughter needs to get more physical exercise. Her options are usually very limited as a result of her TSC, but even more so now she is shielding due to coronavirus. We would like to get a trampoline with side supports to keep her safe so she can exercise in the garden where she feels comfortable.

    — Recent support fund recipient

  • My son is desperate for a new mattress and bedding. He is doubly incontinent, and although I have tried to protect the mattress it is beyond repair. He is embarrassed by his stained bedding and the mattress smells. Changing these items will improve his mental health.

    — Recent support fund recipient

  • The Support Fund is a lifeline for people who really need help. For us, a laptop is necessary for our daughters educational needs, as she is now home-schooled due to the frequency of seizures. This will really help with her learning.

    — Recent support fund recipient