This festive season, help us support people with cardiomyopathy by giving them information, medical advice, emotional support and practical help through our nurse helpline, peer support network and information resources. Donate your Santa Dash and 12 Days of Christmas Challenge donations here.
Registered Charity in England and Wales (1164263)
Cardiomyopathy UK’s service is vital and during a pandemic, in my opinion, it’s another emergency service.
Cardiomyopathy UK makes me feel part of a community and family. In the pandemic they have been absolutely incredible, giving me free and simple access to experts to help me understand the reality, give me reassurance, strength and hope for the future. I cannot thank them enough.
When you're diagnosed with cardiomyopathy, you feel like you are dumped on a desert island not knowing how to survive. You eventually find others on the island who are going through the same thing. Without Cardiomyopathy UK's peer support you're on your own.
Cardiomyopathy is a disease of the heart muscle which can have a devastating impact on the lives of people of all ages and is usually inherited. It affects 1 in 300 – an estimated 200,000 people in the UK and is sadly the main cause of sudden cardiac death in people under 35. The newly diagnosed often feel overwhelmed by fear and uncertainty, their lack of understanding at this crucial time increases psychological distress, leaving people feeling isolated.
We are the only charity in the UK supporting people with the life-limiting heart condition cardiomyopathy and educating healthcare professionals. We want everyone affected to lead long and fulfilling lives by helping them to understand and manage their condition and limit the impact on psychological well-being through on-going personal support: nurse helpline, information and resources and on-going peer support.
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