Alex's Wish is a parent led charity joining the fight to end Duchenne Muscular Dystrophy, a severe & progressive muscle wasting condition, with a life expectancy of 25 years. Huge advances in science & medicine mean a cure is no longer a pipe dream, with funding & awareness we can achieve our goal.
It ran from 12:00 PM, 1 December 2020 to 12:00 PM, 8 December 2020
Registered Charity in England and Wales (1148845)
Our mission is to eradicate Duchenne Muscular Dystrophy which affects 1 in every 3,500 boys born. It’s a devastating aggressive muscle wasting disease which leaves children completely paralysed by late teens. It is caused by a mutation on the X chromosome, & it can affect any family. Boys are missing a protein, as a result every single muscle in their body is destroyed.It is 100% fatal & most boys are only expected to live until their mid-twenties due to heart and respiratory complications.
Duchenne currently has a high unmet medical need. We will provide funding to clinical trials&research projects that have a direct route to market – so only viable projects. Having worked with the best organisations in the world working to conquer Duchenne we now believe there is likely to be a breakthrough. Our urgent need for funding is the sheer fact that many opportunities now exist & the research landscape has never been more prevalent, so many clinical trials available to those families af
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