We're raising money in order to fund research into Lyme disease, one of the most under-researched illnesses in the western world. This campaign will support our Innovation Fund, which will see us give grants to exciting projects that look to improve testing and treatment.
It ran from 12:00 PM, 1 December 2020 to 12:00 PM, 8 December 2020
Registered Charity in England and Wales (1169342)
There are thought to be around 9,000 cases of Lyme disease each year in the UK, but the true figure is unknown, because the current diagnostic tests available on the NHS are not 100% accurate. This can cause delays in diagnosis, which can have a devastating effect on patients, leaving them with chronic illnesses, permanent nerve and tissue damage, and other life-limiting symptoms. Also, there’s currently no way to test and know for sure if treatment has worked, and the current treatment protocols don’t work for every patient.
Only objective and thorough scientific evidence will change the way NHS patients get diagnosed and treated. We aim to help find this evidence by funding research into creating a gold standard test for Lyme disease that will prevent current delays in diagnosis, and the need for UK patients to pay for private and expensive testing or treatment, here or abroad. Our Innovation Fund will help to get ideas off paper and in the lab, and hopefully encourage young minds into the field of Lyme research.
If doctors had had a more reliable testing process and better knowledge of this disease, Adam would have been treated sooner and perhaps experienced less severe symptoms. We need doctors to be more well informed and for a test that looks at more than just an antibody response.
My Lyme diagnosis took eight years to reach, by which point the disease had caused absolute havoc in my body. But, if the correct research and training for NHS doctors was in place, my hope is that others will not have to suffer like I did and can be tested and treated immediately.
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