Haemophilia Scotland

Haemophilia Scotland

Scotland's charity for individuals and families with bleeding disorders including haemophilia, von Willebrand's, clotting factor deficiencies, and platelet disorders; providing independent patient-friendly information, support, and working with the NHS for the best possible treatment and care.

history Campaign has now closed

It ran from 12:00 PM, 1 December 2020 to 12:00 PM, 8 December 2020

open_in_new https://haemophilia.scot/
Check mark Match funded

Campaign target

£4,000

Amount raised

£2,780

Donations

31

Championed by The Reed Foundation

    Category

  • Community Support & DevelopmentCommunity Support & Development
  • Health/WellbeingHealth/Wellbeing
  • Information/AdviceInformation/Advice

    Helping

  • People With DisabilitiesPeople With Disabilities

Location

United Kingdom

  • Haemophilia Scotland have always been there for us as a family.

    — Ms S from Glasgow

  • A great organisation that helps all of the bleeding disorder community. Well done guys.

    — Mr A from Inverness

Situation

Bleeding disorders cause extremely painful internal bleeds. Bleeds into joints also cause permanent damage leading to chronic pain and reduced mobility. The conditions can lead to isolation, loss of educational opportunities, and discrimination at work. Treatment with contaminated products has also lead to hepatitis and HIV infections which add to the stigma. As rare conditions, it is hard for patients to find relevant information, get support from other patients, and to speak out together.

Solution

We will strengthen our support to our community through regular phone calls to directly address isolation and quickly identify those in need of targetted support. We will adapt the high-quality information we have already developed with specialist healthcare professionals to make it accessible to those who prefer audiovisual or pictorial information. We will strengthen the voice of patients and families from the managed clinical network to the Infected Blood Inquiry.