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As the Covid crisis continues, demand for guidance and support has increased significantly. We remain a vital resource to those living with a muscle-wasting condition as they look to decipher ever-changing advice from public health about shielding and how it will affect their individual situation

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Categories

  • Health/Wellbeing Health/​Wellbeing
  • Information/Advice Information/​Advice
  • Beneficiaries

    • People With Disabilities People With Disabilities

    Situation

    Shielding has now officially ended however those with a muscle-wasting condition remain in the most vulnerable category. The need for our helpline and virtual peer support has increased as a result, despite a £2.8million decrease in funding. Since April we have dealt with 1093 requests for help and information even with having to reduce helpline hours. Financial support is needed to expand our helpline service and virtual event series to eliminate the felling of loneliness.

    Solution

    Our helpline capacity will be increased by upskilling volunteers thus enabling our team to continue to offer advocacy support particularly as they receive calls for assistance with complex issues. We have quickly adapted technology to provide weekly Live Q&A sessions to replace regional events and will extend our well-being programme to ensure that we are providing support for people of all ages during this period of isolation. We held our Annual Conference online and are looking to replicate this model to ensure that our community receives access to clinicians and peer support online.

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    100%
    Categories

  • Health/Wellbeing Health/​Wellbeing
  • Information/Advice Information/​Advice
  • Beneficiaries

    • People With Disabilities People With Disabilities