Muscular Dystrophy UK

Information & Support at Muscular Dystrophy UK

As the Covid crisis continues, demand for guidance and support has increased significantly. We remain a vital resource to those living with a muscle-wasting condition as they look to decipher ever-changing advice from public health about shielding and how it will affect their individual situation

history Campaign has now closed

It ran from 12:00 PM, 1 December 2020 to 12:00 PM, 8 December 2020

open_in_new https://www.musculardystrophyuk.org/

Registered Charity in England and Wales (205395)

Check mark Match funded

Campaign target

£93,200

Amount raised

£93,227

Donations

81

Championed by The Julia and Hans Rausing Trust

    Category

  • Health/WellbeingHealth/Wellbeing
  • Information/AdviceInformation/Advice

    Helping

  • People With DisabilitiesPeople With Disabilities

Location

United Kingdom

  • "It’s good to know that you can just pick up the phone and get your questions answered. Not everyone has a good hospital team behind them who know about these things. If it wasn’t for the charity, I wouldn’t have anyone to ask these questions"

    — Sarah, MDUK helpline user

  • "We attended a superb webinar organised by MDUK. Excellent speakers, so much information and lots of research. I am determined to get a referral when life gets better."

    — John, Covid Support Seminar attendee

Situation

Shielding has now officially ended however those with a muscle-wasting condition remain in the most vulnerable category. The need for our helpline and virtual peer support has increased as a result, despite a £2.8million decrease in funding. Since April we have dealt with 1093 requests for help and information even with having to reduce helpline hours. Financial support is needed to expand our helpline service and virtual event series to eliminate the felling of loneliness.

Solution

Our helpline capacity will be increased by upskilling volunteers thus enabling our team to continue to offer advocacy support particularly as they receive calls for assistance with complex issues. We have quickly adapted technology to provide weekly Live Q&A sessions to replace regional events and will extend our well-being programme to ensure that we are providing support for people of all ages during this period of isolation. We held our Annual Conference online and are looking to replicate this model to ensure that our community receives access to clinicians and peer support online.