This campaign has now closed
We are raising funds to support anyone affected by Spinal Muscular Atrophy in the UK. COVID-19 has seen a dramatic decrease in the charity's income and to maintain our vital services, we're looking to raise funds through this year's Big Give Christmas Challenge.
Categories
Beneficiaries
Situation
Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition causing progressive muscle weakness and loss of movement due to muscle wasting (atrophy). This may affect crawling and walking ability, arm, head and neck movement, breathing and swallowing. There are different forms of SMA and a wide spectrum of how severely children, young people and adults are affected. As a rare condition, support tailored to each individual.
Solution
SMA UK provides information & support to help negotiate the complex & challenging world of health & disability services, access to school &, in time, further education, work and independent living. This may be in the form of: • The Outreach Service that provides face-face, email & phone support • By funding research initiatives including advancing the understanding of the complexities of SMA • By facilitating opportunities for people with SMA to meet, share experiences & build support networks
