This campaign has now closed

DEBRA is raising money to fund an enhanced EB healthcare service at Great Ormond Street Hospital (GOSH). GOSH is an EB centre of excellence and treats up to 500 of the most seriously ill children from across the UK every year

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Categories

  • Health/Wellbeing Health/​Wellbeing
  • Hospitals/Hospices Hospitals/​Hospices
  • Beneficiaries

    • People With Disabilities People With Disabilities

    Situation

    Epidermolysis Bullosa (EB) is a highly complex, painful and debilitating genetic skin condition which requires enhanced medical care and treatment if children are to be able to live with the minimum amount of pain and the maximum quality of life possible to them. Unfortunately, the NHS is unable to fund enhanced elements of the EB healthcare service at GOSH, leaving children vulnerable and families lacking the vital information, care and support that is essential to their child's well-being.

    Solution

    DEBRA has pledged to fund the outstanding cost of enhanced EB healthcare at GOSH so we can ensure children with this terrible genetic condition are given the specialist medical care and support they need. This includes enhanced nursing provision for children and access to a specialist dietician and podiatrist (walking is a huge challenge for most children with EB and the condition also makes food hard to swallow and digest). It also includes clinical supervision and training for EB nurses.

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    100%
    Categories

  • Health/Wellbeing Health/​Wellbeing
  • Hospitals/Hospices Hospitals/​Hospices
  • Beneficiaries

    • People With Disabilities People With Disabilities