Caudwell Lymeco Charity

Research project into Lyme disease testing

We're raising money in order to fund research into Lyme disease, one of the most under-researched illnesses in the western world. Current tests available on the NHS are at best, 80% accurate, meaning that hundreds, if not thousands, of people each year are receiving false negatives and no treatment.

Donations open 12:00 PM, 3 December 2019 to 12:00 PM, 10 December 2019

open_in_new https://caudwelllyme.com

Registered Charity in England and Wales (1169342)

Campaign target

£4,000

Amount raised

£5,250

Donations

57

Championed by The Hospital Saturday Fund

  • Last year, a friend of mine was admitted to hospital and eventually diagnosed with Lyme disease. He suffered complications and sadly passed away in June 2019. It's known that early diagnosis of Lyme is the key to recovery, and educating health professionals through research is fundamental.

    — Chris, friend of Lyme sufferer

  • My Lyme diagnosis took eight years to reach, by which point the disease had caused absolute havoc in my body. But, if the correct research and training for NHS doctors was in place, my hope is that others will not have to suffer like I did and can be tested and treated immediately.

    — Rachael Gibson, Lyme sufferer and Caudwell LymeCo supporter

  • I cannot tell you how much it meant to receive some empathetic words and some suggestions of how I might progress my quest for treatment. I am so grateful for the work that you are doing to educate the world.

    — MD, Lyme Patient

Situation

There are 3,000 cases of Lyme disease each year in the UK, but the true figure is thought to be much higher, because the current diagnostic tests available on the NHS are not 100% accurate. The government's independent inquiry of 2017 acknowledged that there are delays in diagnosis. If not spotted and treated quickly, the Lyme infection can have a devastating effect on patients, leaving them with chronic illnesses, permanent nerve and tissue damage, and other life-limiting symptoms.

Solution

Only objective and thorough scientific evidence will bring about a change in the way NHS patients get diagnosed and treated. The charity aims to help provide this evidence by funding the research recommendations made by NICE (National Institute of Health and Care Excellence), beginning with research to find a gold standard test for Lyme disease that will prevent current delays in diagnosis, and the need for UK patients to pay for private and expensive testing or treatment, here or abroad.