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Living with, or living with someone who has, muscular dystrophy can cause deep distress and trauma, for which there is cruelly little support. Our Mental Health Matters programme will provide direct support to people affected and ensure more adequate help is available through the NHS.

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Situation

Living with a condition that is taking away one’s mobility and reducing one’s life expectancy, or watching one’s child gradually lose the muscle that powers their very heartbeats, can cause profound emotional trauma. Last year Muscular Dystrophy UK surveyed over 700 people living with muscle-wasting conditions and found that depression, anxiety and suicidal feelings were alarmingly widespread. Fewer than a third of respondents had been offered any form of psychological support.

Solution

We will address the lack of specialised counselling by employing a counsellor, we will provide a network of clinic-based advocacy and outreach support, produce literature to give valuable advice and fund peer support groups for families. We have set up a

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