This campaign has now closed

The ataxias are a set of rare, life-limiting, progressively destructive conditions affecting 12,000 people across the UK. Currently there are no cures for the ataxias and it is often difficult and stressful for many people to get the correct diagnosis and treatment for their condition.

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Categories

  • Health/Wellbeing Health/​Wellbeing
  • Medical Research Medical Research
  • Beneficiaries

    • People With Disabilities People With Disabilities

    Situation

    At present there are only two adult ataxia centres in the UK, with two children's centres currently in development thanks to the success of last year's Big Give campaign. With over 12,00 adults and children facing the prospect of progressively losing the ability to walk, and potentially lose their speech, sight and hearing, it often takes many years to get the correct diagnosis and treatment simply because patients aren't able to access a specialist ataxia neurologist.

    Solution

    We need to raise funds to set up additional NHS accredited ataxia centres and improve access to extended specialist services. These centres will provide diagnostic and ongoing care for adults and children living with ataxia. Our aim is to further extend services at all existing and new centres; increasing the provision of Multi-Disciplinary Community Teams to provide better coordination of treatment, and virtual clinics providing long distance treatment and care, reducing the need to travel.

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    100%
    Categories

  • Health/Wellbeing Health/​Wellbeing
  • Medical Research Medical Research
  • Beneficiaries

    • People With Disabilities People With Disabilities