250,000 children, young people and adults struggle to get the support they need in a world that does not yet understand how to cure, treat or often even recognise M.E. We are here, often when no-one else is, offering one-to-one support and information, showing the world that people with M.E. matter.
It ran from 12:00 PM, 3 December 2019 to 12:00 PM, 10 December 2019
Registered Charity in England and Wales (1036419)
Action for M.E.’s constant support network is lovely. I like to hear of people’s success stories, learn new things about M.E. It is so useful hearing from others that are in my situation and realising how I am feeling is ‘normal’ and learning new ways to manage it.
It’s a real reassurance to know that I can come back to [Action for M.E.] at any point in the future if I’m going to have little bumps along the journey and I need a bit of help getting through.
“It’s difficult for me to go outside, to see my friends. M.E. holds me back, I was such an energetic person before.” Alex was nine years old when she was diagnosed with the chronic, neurological illness Myalgic Encephalomyelitis (M.E.) after getting a stomach bug. For children with M.E. like Alex, coping with debilitating symptoms, from extreme unremitting exhaustion to intense pain, is only half the battle. Lack of information and awareness means people with M.E. are not getting access to treatment, education, work or social care.
“We were put in touch with Action for M.E. through Alex’s Deputy Head Teacher. They have been there for Alex and for us as a family; I’ve always felt that I could pick up the phone.” Tracy, Alex’s mum We provide a lifeline, connecting people with M.E. to the support they need when they need it most. We share vital, accessible information; work closely professionals to improve the support they offer people with M.E. and invest time and money in driving collaborative, cutting-edge research.
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