This campaign has now closed
To support through medical research the investigation of potential therapies that will help children who have the rare neurological, life shortening, genetic condition Ataxia-Telangiectasia (A-T)
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Beneficiaries
Situation
Ataxia-Telangiectasia (A-T) is a condition which affects children and young adults. Babies are born 'normal' and then slowly from 4 they begin to lose their independence often needing a wheelchair by 7 and a feeding tube by age 12. People with the condition have very weak immune systems and often dies in their teens or early twenties of cancer or a severe respiratory infection. There is currently no cure for this condition, no treatment and no way to halt the progression.
Solution
Action for A-T is working with researchers globally to advance understanding and knowledge of A-T with the aim of finding a treatment or potential therapy to make a difference to lives of people with A-T. These are more promising times for A-T children but research can only move at the pace that funds will allow. We are currently looking for funding to put into a project that is looking at developing a drug compound that could help not only people with A-T but also other neurological conditions.
