Epilepsy Society

Epilepsy Society Helpline

The Helpline is a caller-led telephone service for people affected by epilepsy to talk about any issues surrounding the condition. It was started in 1990, when calls would come through from people often in a heightened emotional state and in need of support and information.

history Campaign has now closed

It ran from to

Registered Charity in England and Wales (206186)

Donations

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    Category

  • Health/WellbeingHealth/Wellbeing

    Helping

Location

  • The support I received from the Helpline was invaluable

    — Helpline caller

  • Thank you for listening, you don't know what it's mean to be able to talk things through

    — Helpline caller

  • You have been so amazing, you don't know what it's meant to be able to pick up the phone and talk to you, whilst I have been dealing with all of this

    — Helpline caller

Situation

Much is still unknown about the causes, treatment and prevention of epilepsy, and it remains a highly stigmatised condition. People who have a diagnosis of epilepsy can find it difficult to accept because it can affect all aspects of their life. This can lead to feelings of isolation because they feel the people close to them do not fully understand. In addition, some people are unsure where to go to find information, particularly if they have specific questions.

Solution

Our Helpline enables people from all over the world to speak confidentially to specially trained operators about their personal/emotional/practical issues surrounding epilepsy. Operators are also trained in counselling to help deal with callers who might be distressed. The service is caller-led so there are no time limitations, and callers can remain anonymous if they wish. Operators can guide callers to relevant information sources and send information out if requested.