This campaign has now closed
Julia’s House, which cares for children with life-limiting conditions, is building a much needed children’s hospice in Devizes – the 1st in Wiltshire. It will be a hub for play sessions and sleepovers, but also a refuge at the end of the child’s life. We seek funding for the end-of-life suite.
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Beneficiaries
Situation
Wiltshire, a rural county with poor transport links, is one of 2 major UK counties without a children’s hospice. Families facing the loss of their child have to travel to hospices in other counties: a drive of 90+ minutes in good traffic. Travelling with a very ill child is always difficult as children may have frequent seizures or stop breathing without warning. But at the end of the child’s life, a long journey is unbelievably stressful and traumatic for everyone involved.
Solution
We’re building a children’s hospice in Wiltshire – a bright, welcoming ‘home from home’ for play sessions, sleepovers and, sadly, end-of-life care in the ‘Pegasus Suite’. The Suite comprises a child’s bedroom, family bedsit and en-suite where the family can stay together during the child’s last days or weeks, with full support from our nurses. After death, a cuddle cot/cooling blanket can be used to cool the child’s body so the family can stay at the hospice and say goodbye in their own time.