Julia's House - The Dorset and Wiltshire Children's Hospices

Building Wiltshire's first children's hospice

Julia’s House, which cares for children with life-limiting conditions, is building a much needed children’s hospice in Devizes – the 1st in Wiltshire. It will be a hub for play sessions and sleepovers, but also a refuge at the end of the child’s life. We seek funding for the end-of-life suite.

history Campaign has now closed

It ran from 12:00 PM, 29 November 2016 to 12:01 PM, 6 December 2016

Registered Charity in England and Wales (1067125)

open_in_new https://www.juliashouse.org/
Check mark Match funded

Campaign target

£13,676

Amount raised

£15,984

Donations

30

    Categories

  • CancerCancer
  • Health/WellbeingHealth/Wellbeing
  • Hospitals/HospicesHospitals/Hospices

    Helping

Location

Situation

Wiltshire, a rural county with poor transport links, is one of 2 major UK counties without a children’s hospice. Families facing the loss of their child have to travel to hospices in other counties: a drive of 90+ minutes in good traffic. Travelling with a very ill child is always difficult as children may have frequent seizures or stop breathing without warning. But at the end of the child’s life, a long journey is unbelievably stressful and traumatic for everyone involved.

Solution

We’re building a children’s hospice in Wiltshire – a bright, welcoming ‘home from home’ for play sessions, sleepovers and, sadly, end-of-life care in the ‘Pegasus Suite’. The Suite comprises a child’s bedroom, family bedsit and en-suite where the family can stay together during the child’s last days or weeks, with full support from our nurses. After death, a cuddle cot/cooling blanket can be used to cool the child’s body so the family can stay at the hospice and say goodbye in their own time.

  • “We are thrilled and excited to hear the great news that Julia's House is ready to start work on the new hospice in Wiltshire. This new specialist facility will make a huge difference to us and so many other families like ours. We can't wait for its arrival.”

    — Rebecca Thursby, Surveyor for the Devizes hospice project and mum of Sophia, a Julia's House child

  • “Having people look at your life from a different perspective – and not only that, but to look at the whole family’s needs is what marks Julia’s House out. These aren’t just nursing skills on offer, they are human skills. This is the benchmark for what all care should be like.”

    — Paola Campari-Moss - Julia's House Ambassador and mum of Chiara, who sadly died aged four, with support from Julia's House nurses

  • “I woke up crying every single day unable to cope with what was ahead of me – then I was told about Julia’s House. I can never thank the care team enough for the support they have given my family. Julia’s House is fantastic.”

    — Donna, mum to Euan who receives care from Julia's House

  • “We are thrilled and excited to hear the great news that Julia's House is ready to start work on the new hospice in Wiltshire. This new specialist facility will make a huge difference to us and so many other families like ours. We can't wait for its arrival.”

    — Rebecca Thursby, Surveyor for the Devizes hospice project and mum of Sophia, a Julia's House child

  • “Having people look at your life from a different perspective – and not only that, but to look at the whole family’s needs is what marks Julia’s House out. These aren’t just nursing skills on offer, they are human skills. This is the benchmark for what all care should be like.”

    — Paola Campari-Moss - Julia's House Ambassador and mum of Chiara, who sadly died aged four, with support from Julia's House nurses

  • “I woke up crying every single day unable to cope with what was ahead of me – then I was told about Julia’s House. I can never thank the care team enough for the support they have given my family. Julia’s House is fantastic.”

    — Donna, mum to Euan who receives care from Julia's House