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Ataxia-Telangiectasia is a rare and complex progressive genetic disease that causes severe disability in young children and early death. There is no cure or treatment at present. The A-T Society is a small national charity working to improve quality of life both now and in the future for those who have A-T. Clinical trials are 5 to 10 years away. We seek funds to put towards the research effort so that we can get to clinical trials earlier.
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A-T is a rare disease so we do not have wide support. We do not have eye-catching projects. What we do need if our children are to be cured, is more research funds. Very boring possibly and not appealing but this is what is required. A-T is the focus for international research because the children who have it exhibit symptoms such as cancer susceptibility, progressive neurological deterioration, immuno-deficiency and premature ageing. It is hoped that A-T may show the links between them and so lead to better health for the whole of humanity. The children will benefit and so will the man in the street. Please help our children to have a future to look forward to. At present we can only support one clinical research fellow. We would like to do so much more. We are members of AMRC and all research projects are peer-reviewed before we grant funds.