As part of our direct commitment to increasing knowledge and awareness of kidney cancer we are organising a Patient Day in London on 18th November 2009 for patients and their carers, and healthcare professionals. The aim of this day is to improve awareness of kidney cancer, its causes, diagnosis and treatments, and to provide a forum for patients and carers to ask questions of a panel consisting of healthcare professionals, government representatives and patients.
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Registered Charity in England and Wales (1120146)
The Patient Day is aimed primarily at patients who have been diagnosed with kidney cancer and their families. Invites are also to be sent to nurses and physicians with an interest in kidney cancer and representatives from pharmaceutical companies investigating new treatments for kidney cancer. It is anticipated that the conference will be attended by about 100 people. We hope the James Whale Fund for Kidney Cancer Patient Day will provide kidney cancer patients, their families and carers with a much needed support network offering advice, information and encouragement. The morning session will be opened by our patron, James Whale, followed by presentations on the prevalence of kidney cancer, causes and risk factors, symptoms, methods of diagnosis, staging and treatment. We also hope to have a representative from NICE to talk about the recently published NICE Guidance for the new kidney cancer treatments and a specialist nurse to talk about care of kidney cancer patients. The afternoon session will consist of a question and answer session chaired by Nicholas Owen, one of our Ambassadors, with a panel consisting of some of the UK‚Äôs leading kidney cancer specialists, a specialist nurse, a NICE representative and a patient. The direct impact of the Fund‚Äôs activities will be measured by means of a feedback questionnaire at the end of the Patient Day and followed-up with a patient survey. The desired outcome of our Patient Day is to ensure that patients receive the information and support they need to help them and their families/carers cope with this disease. The budget for the Patient Day is ¬£28,865.
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