Young people living with heart disease face physical limitations and an uncertain lifespan. Normal development and education will be impeded and they frequently feel lonely and isolated from school friends and family. By our estimation, there are 28,000 teenagers in the UK currently living with congenital heart disease and arrhythmia. Young Hearty Voices is a pilot three year project starting in January 2009 and ending in September 2011. It will offer young people aged 13‚Äì19, growing up with heart disease, the opportunity to increase their involvement in the design of their health and care services.
It ran from to
Registered Charity in England and Wales (225971)
Young Hearty Voices will empower and help young people to build their confidence so they are able to take part in decision making and take control of situations in their health care. It will also help them develop specific skills such as coping techniques, communication skills, assertiveness, public speaking, how to initiate change for others and focus groups. This will enable young people to break down communication barriers and increase understanding between young people living with heart disease and health professionals, families, peers and teachers. This project will also generate a pool of young people who are trained and willing to play an active part in influencing health and educational services, to provide peer support and mentoring and thus help tackle prejudice against all disability in the wider community. Last year, at our first conference for teenagers living with heart disease, empowerment and information were top of the agenda. There are four main outputs of the Young Hearty Voices programme that we would like to achieve. 1. The number of young people attending the Young Hearty Voices sessions to reach 180 over the three years. 2. The number of young people attending Young Hearty Voices and peer mentoring training, and gaining a qualification on completion to reach 100 over the three years. 3. The number of people attending the Young Hearty Voices and Health Advocates training, and gaining a qualification on completion to reach 100 over the three years. 4. The number of young people who attend the Training the Trainers course and gaining a qualification on completion to reach 20 people over two years. The total cost of this project is ¬£403,723 over three years
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