The XLP Research Trust

Translation Project

Finding out your son or sons have a life taking medical research condition is one of the hardest things any family will take on. To have no useful easy to understand literature on the condition makes it even harder. This project looks to address this.

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    Category

  • Education/Training/EmploymentEducation/Training/Employment
  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research

    Helping

Location

Situation

XLP is a rare life taking condition. Googling XLP will bring up an array of medical publications that are difficult for any non medical person to interpret - especially if English is not a first language.

Solution

By translating family frendly material from English into other languages. We have already undertaken this for some lanaguages and the response back from XLP affcted families has been 100% supportive.