Duchenne muscular dystrophy causes increasing disability as it progresses. This means the people affected by the condition, require increasing amounts of care, resulting in loss of independence, social isolation, unhappiness and poorer health and life outcomes. Duchenne frequently undermines the confidence of people to lead a fulfilling life.

Lights, Camera, Action! will enable people living with Duchenne to show-off all the exciting, fun and social things they get up in spite of the challenges they face. It will empower other people affected by Duchenne, to live the fullest life possible. Young people with Duchenne will be invited to submit videos to a special website, curated by Action Duchenne, and be able to get an insight into the exciting lives of others from all over the world.