Sickle cell anaemia is a grossly neglected health condition in Africa. The aim of this project is to set up a Secretariat in London from where the Alliance will coordinate its activities and projects, that will bring tangible benefits to many children and young people living in Africa.
It ran from 12:00 PM, 27 November 2018 to 12:00 PM, 4 December 2018
Registered Charity in England and Wales (1120902)
The problem we are trying to solve is the neglect of Sickle cell anaemia and the lack of a voice from patients and their carers in Africa. This platform aims to bring tangible support to patients and their carers.
Through facilitating collaboration within the global Sickle cell community, we provide a strong and collective voice for Sickle cell patient organisations across Africa and the world. We encourage and support established Sickle cell groups; we do not aim to replace or supersede them. By working together, we identify collaborative actions across the international community and work towards our vision of a world free from the stigma of Sickle cell disorders.
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