myaware

Ccampaign_20563_App_2374

myaware is the only UK charity supporting sufferers of myasthenia. Our daily runnings costs total £3,000 per day as we work hard to raise awareness of myasthenia, provide support for those living with it and their families, offer advice and tips as well as fund the research towards a cure.

history Campaign has now closed

It ran from 10:00 AM, 5 December 2013 to 5:00 PM, 18 December 2013

open_in_new https://www.myaware.org/

Registered Charity in England and Wales (1046443)

Check mark Match funded

Donations

0

    Category

  • Health/WellbeingHealth/Wellbeing
  • Health/WellbeingHealth/Wellbeing
  • Health/WellbeingHealth/Wellbeing
  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research

    Helping

Location

  • Thank you for giving me the strength to fight . MGA has been my lifeline when I felt all was lost and there was no hope

    — Julie Connolly

  • It took a year to get a diagnosis and I thought I was going to die. MGA have helped me to cope.

    — Pauline Price

  • There‚Äôs so much need; Just because it‚Äôs out of the public spotlight does not take the need away

    — Ian Soulsby

  • Thank you for giving me the strength to fight . MGA has been my lifeline when I felt all was lost and there was no hope

    — Julie Connolly

  • It took a year to get a diagnosis and I thought I was going to die. MGA have helped me to cope.

    — Pauline Price

  • There’s so much need; Just because it’s out of the public spotlight does not take the need away

    — Ian Soulsby

Situation

myaware supports people with the rare autoimmune diseases - Myasthenia. The condition is characterised by fluctuating muscle weakness. It affects nearly 1 in 5,000 people, and can affect anyone at any stage in their lives. we know of around 12,000 sufferers in the UK. myaware offers a lifeline to the newly diagnosed as well as long term sufferers. People often feel isolated when diagnosed with a rare disease and doubly isolated by the physical symptoms of myasthenia.

Solution

myaware have been operating for over 50 years. Our support groups are the backbone of the charity and we have a network across the country providing support, information and friendship for myasthenia sufferers and their families. Our quarterly newsletter is distributed across the UK providing information and a connection for people who may not be able to attend meetings. Our online forum is a fantastic source of peer support and our Specialist Nurses are a huge source of support and information.