A respite care to be first of its kind to provide a holistic care package to meet the needs of sickle cell sufferers. Estimated cost for building, equipment and other initial costs of ¬£1.5M to develop a unique service. Government cuts affects vulnerable people especially those with SC & Thalassaemi
It ran from 12:00 PM, 4 December 2015 to 5:00 PM, 14 December 2015
Registered Charity in England and Wales (1088697)
Sickle Cell disease not yet recognized by the government in the same way as other diseases and is unfortunately not given the resources to help individuals and families struggling with this life long illness to have a better quality of life. Their experiences from the time they go into SC crisis to when they leave hospital includes a host of problems, obstacles and traumas in getting medication and consideration for their external challenges, their children and general social care after leaving hospital.
Provide pre and post care services. The respite is an extension of the services we are already providing with outreach services, addressing all areas of their circumstances and not just the symptoms. A case of solving many problems under one roof; reducing the need for lengthy stays and readmission to hospital. Also help to address the inequality that exists in the current social and medical care.Some clients has children that are considered young carer‚Äôs taking care of mom or dad and fend for themselves
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