The Daisy Garland

Reducing the risk of SUDEP

To provide grants for night-time breathing (SATs/Epilepsy) monitors, for use in the home, for families of children with drug-resistant epilepsy who are at a high risk of SUDEP (sudden unexpected death in epilepsy patients).

history Campaign has now closed

It ran from 12:00 AM, 1 January 2015 to 12:00 AM, 1 December 2015

Registered Charity in England and Wales (1106530)

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  • Health/WellbeingHealth/Wellbeing

    Helping

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Situation

Children with drug-resistant epilepsy are at a very real risk of SUDEP, over 1,000 people die each year from SUDEP and a high percentage of these deaths happen at night or when they are asleep. The findings of the NICE (National Institute for Health and Care Excellence) Audit 2002 found that 42% of deaths were potentially avoidable. Fear of SUDEP has a detrimental effect on the quality of life of the whole family, parents struggle to sleep, often sharing a bed or room with their child.

Solution

Night-time breathing monitors save lives and give families peace of mind at night allowing children to sleep safely in their own bedrooms. Their parents are able to sleep knowing that the monitor will alert them should their child have a seizure whilst their child has the independence of sleeping in their own bedroom without the need for constant supervision. This dramatically improves quality of life for the whole family.