since the discovery of vCJD and the knowledge that it can be transmitted through blood and surgical instruments thousands of people are being told that they are at heightened risk. Our 24 hour helpline providing practical and emotional support for people affected and for those at risk.
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CJD is a devastating disease, always terminal, with no diagnostic test or treatment and death from onset of symptoms as little as 12 weeks to a few years. As it is so rare, often professionals have not seen a case previously. When a patient and their family are told that they have or are at heightened risk of CJD they are frightened and feel isolated. The CJD Support Network 24 hour helpline is a lifeline for families where they can obtain information about the disease and emotional support
It will provide much needed support to patients, families and professionals
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