Tourettes Action

Improve Quality of Life for adults with Tourette Syndrome

Help people self-manage their TS so that they are empowered to lead active and fulfilling lives. Reduce isolation and build self-esteem. Improve others’ ability to provide appropriate care and resources.

history Campaign has now closed

It ran from to

Registered Charity in England and Wales (1003317)





  • Arts/Culture/HeritageArts/Culture/Heritage
  • Community Support & DevelopmentCommunity Support & Development
  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research


  • Older PeopleOlder People
  • Women & GirlsWomen & Girls
  • OtherOther



The cornerstone of the programme is self-management, including pilot self-management courses, complemented by online support for those unable or unwilling to attend. The projects include: • a function-rich website to support a vibrant online community • greatly expanded network of support groups for hands-on local knowledge and support • increased awareness of the true nature of Tourette Syndrome amongst employers, professionals and the public • education of GPs and other health and social care professionals, making diagnosis more straightforward and better provision of statutory services The annual cost of the programme is £70,000. This includes project costs for publications, website, conferences, social networking, local groups and supporting infrastructure.