Down's Syndrome Association

Tell it Right, Start it Right

The manner in which parents are told their child has or may have Down’s syndrome varies dramatically. We are acutely aware that there is a gap in knowledge and that some essential communication skills need to be addressed during and after pregnancy.

history Campaign has now closed

It ran from 12:00 AM, 1 July 2010 to 12:00 AM, 1 July 2014

open_in_new http://www.downssyndrome.org.uk

Registered Charity in England and Wales (1061474)

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Situation

The manner in which parents are told their child has or may have Down’s syndrome. We compiled some very interesting data from our “Tell it Right” survey: • 63% of the respondents said that during their pregnancy did not receive any information on DS and only 20% recalled receiving a leaflet which included information on DS. Of those people, many found the information difficult to understand, and was old and outdated.

Solution

The DSA has developed a comprehensive training programme aimed at midwives and their colleagues that has been accredited by the Royal College of Midwives. Co facilitated by parents and adults with DS, it will provide professionals with advice and guidance on how to get it right during screening and at birth. With 25,000 midwives working in the NHS and a great number of interested medical professionals we plan to host 50 training sessions over the next 2 to 3 years throughout the UK.