The manner in which parents are told their child has or may have Down‚Äôs syndrome varies dramatically. We are acutely aware that there is a gap in knowledge and that some essential communication skills need to be addressed during and after pregnancy.
It ran from 12:00 AM, 1 July 2010 to 12:00 AM, 1 July 2014
Registered Charity in England and Wales (1061474)
The manner in which parents are told their child has or may have Down‚Äôs syndrome. We compiled some very interesting data from our ‚ÄúTell it Right‚Äù survey: ‚Ä¢ 63% of the respondents said that during their pregnancy did not receive any information on DS and only 20% recalled receiving a leaflet which included information on DS. Of those people, many found the information difficult to understand, and was old and outdated.
The DSA has developed a comprehensive training programme aimed at midwives and their colleagues that has been accredited by the Royal College of Midwives. Co facilitated by parents and adults with DS, it will provide professionals with advice and guidance on how to get it right during screening and at birth. With 25,000 midwives working in the NHS and a great number of interested medical professionals we plan to host 50 training sessions over the next 2 to 3 years throughout the UK.
Please upgrade your browser to continue.