People with PSP often have difficulty accessing the care and support they need. This may be because they are unfamiliar with the health and social care system, or because those responsible for providing care do not appreciate what their needs are.

Specialist Care Advisers have long experience of PSP and of the specific services that will be needed at the different stages of the disease. They will liaise between the patient and carer and their local health or social care provider to make sure that services are provided as and when they are needed.