The Cure Parkinson's Trust

Parkinson's Movement

Parkinson’s Movement (www.parkinsonsmovement.org) aims to rally the voices of people with Parkinson’s to ensure that those of us living with the condition have an influence, not just on our own lives but on the entire Parkinson’s agenda.

history Campaign has now closed

It ran from 10:00 AM, 5 December 2013 to 5:00 PM, 18 December 2013

Registered Charity in England and Wales (1111816)

Check mark Match funded

Campaign target

£20,000

Amount raised

£41,321

Donations

10

    Category

  • Health/WellbeingHealth/Wellbeing
  • Medical ResearchMedical Research

    Helping

Location

Situation

In Parkinson's, until very recently, healthcare has been based on the old paternalistic model in which decisions are largely made by neurologists, where necessary supported by other members of the health care team. Rarely have patients had any explicit role in decision-making. We also want to make Parkinson's more of a health care priority and this can only be achieved by raising the profile and number of Parkinson's advocates.

Solution

Patients are essential members of their own health management team. This is the first principle of Parkinson's Movement (PM). PM’s secondary purpose has been to convey the best science to patients and authoritative patient opinion to the medical profession and finally PM aims to push patient issues to the top of the research agenda.