Scottish Huntington's Association

HD Routes - advising young people touched by HD

Huntington's disease is a devastating genetic disorder that causes profound physical disability, deterioration in cognitive function and severe mental ill-health. HD Routes is an interactive resource for all young people facing the significant challenges that are created by living in a HD family.

history Campaign has now closed

It ran from 12:00 PM, 29 November 2016 to 12:01 PM, 6 December 2016


Registered Charity in Scotland (SC010985)

Check mark Match funded

Campaign target


Amount raised





  • Community Support & DevelopmentCommunity Support & Development
  • Education/Training/EmploymentEducation/Training/Employment
  • Health/WellbeingHealth/Wellbeing




Children living in a family affected by HD experience many challenges. 70% of relationships break down under the pressures of living with HD and many young people will experience separation from a parent or siblings. As the health of their resident parent becomes worse 80% of the young people we work with have to take on significant caring responsibilities. In addition everyone who has a parent with HD has a 50% chance of developing the condition themselves. The psychological strain is immense.


We worked with young people to produce the resource with their views at the centre of HD Routes. Packed with dozens of games and activities, HD Routes not only helps young people learn more about HD, but teaches them new ways to cope with the significant challenges that are created by living in a HD family. Living in an HD family can be very confusing. This resource enables young people to access accurate and trustworthy HD information that is written in simple, easy to understand language.