To secure the future of the UK ME/CFS Biobank, an innovative resource which will allow collaborators worldwide to conduct cost-effective research into a poorly understood disease that causes great suffering. The Biobank is the only one of its kind in the UK, and the first in Europe.
It ran from 10:00 AM, 4 December 2014 to 5:00 PM, 17 December 2014
Registered Charity in England and Wales (801279)
Robust biomedical research on ME/CFS is urgently needed. The mechanisms of the disease remain elusive; there is no uniform diagnosis ‚Äì with current treatments restricted to symptom management. Launched and sustained for the first three years by three ME charities and a private donor, the Biobank has never had state funding. This research facility is run by the London School of Hygiene & Tropical Medicine but there are no funds in place beyond 2016 to secure its future or widen its scope.
Research using Biobank samples has the potential to improve lives around the world as researchers strive to understand, diagnose, treat and one day cure the disease. The Biobank is cost-effective as researchers can conduct their studies without recruiting additional participants themselves. Rather, they can use biological samples and data already collected and stored according to rigorous scientific protocols. Details: www.lshtm.ac.uk/itd/crd/research/cure-me/ukmecfsbiobank/index.html
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