Involving people with ME in our campaign to put the known medical facts about this illness into the hands of GPs and so help dispel some of the prevailing medical myths and fantasies.
It ran from 10:00 AM, 5 December 2013 to 5:00 PM, 18 December 2013
Registered Charity in England and Wales (801279)
Many GPs are uninformed about ME/CFS or still dismiss it as a non-existent illness or believe that it is a psychological illness that can be treated using psychological methods, which it is not. This continuing lack of knowledge and these misguided beliefs, and the use of psychological treatments which fail to restore the health of those affected, frequently result in a breakdown of trust between patients and their doctors and leave ME/CFS sufferers feeling very misunderstood.
The first phase was successfully completed in 2013 - with 3,500 copies of our clinical guidance booklet being mailed directly to GP surgeries round the UK. This time we want to involve patients, families and carers directly in the delivery of the guidance to their own doctors so we can get the booklet into many more surgeries.
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