500,000 people are affected by encephalitis (brain inflammation) each year. Our project is a major development of our telephone support line to incorporate a secure video call platform. We will also launch a dedicated encephalitis YouTube channel allowing story sharing & delivery of advice & help.
It ran from 12:00 PM, 28 November 2017 to 12:00 PM, 5 December 2017
Registered Charity in England and Wales (1087843)
A recent YouGov poll reveals that, despite encephalitis being a potentially life-threatening and disabling condition that strikes 1 person every minute, only 20% of the population know what it is - and this can lead to delays in diagnosis. Those who do survive can struggle with the new normal that an acquired brain injury brings - loneliness, isolation, memory problems, physical, behavioural and emotional challenges and the hideous feeling that who they once were can never be recaptured.
We will innovate the way we deliver a major part of our Support Services, using a secure video call platform for those people affected by encephalitis who need help. We will couple this by launching a moderated encephalitis, YouTube Channel where patient stories can be shared (lessening isolation and building confidence), training can be delivered (increasing knowledge and building resilience) and information can be watched repeatedly by people with memory challenges.
Please upgrade your browser to continue.